July 8, 2025

Out of Patients EP409: The Elastic Life of Gigi Robinson

Out of Patients EP409: The Elastic Life of Gigi Robinson

Gigi Robinson walked into the studio, and within 60 seconds, I felt like the out-of-touch Gen Xer trying to program a VCR again. Which, frankly, is precisely why I wanted her on the show.

She's a 27-year-old content creator, public speaker, rare disease advocate, and published author. But strip away the LinkedIn bullet points, and you've got someone who's turned her lived experience with Ehlers-Danlos syndrome and endometriosis into a masterclass in purposeful storytelling. Rather than riding the "influencer" wave, she's dragging the whole term into relevance, and she's doing it with integrity and a hell of a lot of stamina.

We talked about the horror show of waiting rooms, professors who don't believe you're sick because you "look fine," and the reality of building a business from bed between PT sessions and medical appointments. She took me to school on the creator economy and why brand deals aren't dirty words when you're using them to fund truth-telling.

My favorite moment? When she revealed her dog got a brand deal before she did. Runner-up: her description of EDS as a rubber band that's given up on life. Gigi has the kind of clarity you can't fake. She's lived it. And she's earned the mic.