Videos

Because of years of being delayed, dismissed, and denied, metastatic patients have had to become the experts in their own care. With the help of doctors and researchers, these patients are now changing the healthcare system from the inside out. Relevant Resources: Tigerlily Foundation - Barriers Toolkit (https://www.tigerlilyfoundation.org/barrier-toolkits/) Storm Riders…

Breast Cancer Social Media (#BCSM) is an online community dedicated to empowering those affected by breast cancer. #BCSM began in 2011 as a conversation on Twitter and has grown into a world of support, guidance, and reliable information. In this episode, we meet breast cancer survivors and co-moderators of #BCSM,…

In this series finale, we meet Maimah Karmo (http://maimah.com/) , President and CEO of the Tigerlily Foundation (https://www.tigerlilyfoundation.org/) , and learn about her journey to end disparities for young breast cancer patients of color. If you like this series, be sure to subscribe, leave a rating a review, share on…

“Get your affairs in order” was the advice from one ER doctor to Rayanne Lehman upon seeing her chest X-Ray. That was 4 years ago. When Maida Mangiameli received her Small Cell Lung Cancer diagnosis she wanted to live to know her newborn grandchild and that child is now 6…

The Centers for Disease Control and Prevention estimate that nearly one in every eight couples struggles to conceive. Even today, infertility remains a societal taboo to the extent that more than 60% of prospective mothers said they hid their infertility from family and friends, and nearly half didn't even tell…

Once again, the SUNY Binghamton alumni network (https://www.binghamton.edu/alumni/index.html) bestows upon us an incredible guest more than worthy of the hot seat. Dr. Adam Harris (https://www.linkedin.com/in/adam-harris-md-4b38244b/) is a self-proclaimed "reluctant medical practitioner" who accidentally found himself proficient in all the right classes only to realize, "Why not?" Now serving as Clinical…

In today's episode, Matthew welcomes one of his nearest and dearest friends, Geralyn Lucas, whom he met in the earliest days of the nascent adolescent and young adult (AYA) cancer movement circa 2004. Geralyn, a storied American journalist and television producer, had only recently survived breast cancer and released the…

Melissa Berr (https://www.linkedin.com/in/melissaberry123/) y, aka The Cancer Fashionista, is a Stage 1 Triple Negative Breast Cancer. She is now the founder of Cancer Fashionista (https://cancerfashionista.com) (a fashion, beauty, and lifestyle platform for the breast cancer community), the host of the "Dear Cancer, I'm Beautiful" (https://podcasts.apple.com/us/podcast/dear-cancer-im-beautiful/id1561027778) podcast, and the board chair…

Today, Matthew welcomes Dr. Aaron Neinstein (https://profiles.ucsf.edu/aaron.neinstein) , Chief Medical Officer at Notable (https://www.notablehealth.com) , which is — jargon alert — a leading automation platform for patient engagement and staff workflows. What does that mean? Well, you'll find out from this underachieving Triple board-certified endocrinologist (yes, triple) who received his…

The twins are back for another "very special episode" (no — not the one where Arnold gets molested on Diff'rent Strokes or Alex P. Keaton's friend dies) of Out of Patients to celebrate all the things and talk with their Daddy about what 2024 has in store for them. Like…

For decades, only one type of patient has been represented in the breast cancer awareness movement. In this episode, we learn the consequences of this representation gap and meet patients who are flipping the script. Relevant Resources: METAvivor - Health Disparities in MBC (https://www.metavivor.org/take-action/health-disparities-in-mbc/) Tigerlily Foundation - Barriers Toolkit (https://www.tigerlilyfoundation.org/barrier-toolkits/)…

In this episode, we meet breast cancer advocates and users of #BCSM, Liza Bernstein (https://twitter.com/itsthebunk) , Anne Marie Mercurio (https://twitter.com/chemobrainfog) , Christine Hodgdon (https://twitter.com/christeeny513) , and Julia Maues (https://twitter.com/itsnot_pink) . We find out how they got involved in #BCSM and how they utilized the hashtag to further their advocacy. If…

Testing Our Patients is a limited discussion series about how the sausage is made when bringing life-saving diagnostic tests and breakthrough medicines to cancer patients in desperate need of hope. In this episode, we welcome Allison Silverman, CEO of Stupid Cancer, and Lizette Figueroa, Senior Director of Education & Support…

Sickle cell disease (SCD) can affect many areas, including daily life, and some of the effects can be lifelong. More so, SCD impacts the quality of life for many patients in the form of depression, anxiety, executive function, and more. In partnership with The Sickle Cell Disease Association of America,…

More than 53 million Americans act as family caregivers who often fall below the radar sacrificing everything in the name of compassion, empathy, and love. Caregiver Lifehacks amplifies the voices of those impacted by the diagnosis of a loved one. Hungry to connect and share information, these authentically candid interviews…

In 2021, OffScrip Health produced The Cancer Mavericks: A History of Survivorship, an award-winning 8-part limited documentary series about the people and not the disease. So, if you're a narrative history podcast junkie, listen to Episode One of The Cancer Mavericks right here on the Out of Patients feed today.…

Dr. Owen Muir (https://www.linkedin.com/in/owen-m-53345b7/) is an Anna Freud National Centre for Children and Families-trained psychiatrist and official Mentalizing Treatment Supervisor. He is the coauthor of Adolescent Suicide and Self Injury (https://www.amazon.com/s?k=adolescent+suicide+and+self-injury+mentalizing+theory+and+treatment&crid=3PLP7ZF5WEDTP) : Mentalizing Theory and Treatment, a dual board-certified physician, with ABPN certification in general and child and adolescent psychiatry…

What do you get when you cross a professional wrestler, small business coffee company executive, nonprofit consultant, and rare cancer? Well, that would be the uniquely talented and inspiring unicorn that is Sean Wachter (https://www.linkedin.com/in/seanwachter/) , who joined Matthew live in-studio for one hell of a conversation about how they're…

Knownst to me, but unknownst to others, long before the Award-Winning documentary "The Cancer Mavericks: A History of Survivorship (https://podcasts.apple.com/us/podcast/the-cancer-mavericks-a-history-of-survivorship/id1566467305) " hit podcast feeds, a pilot episode was storyboarded and produced to test the waters with our newly minted production team, helmed by acclaimed executive producer, Steve Lickteig (https://www.linkedin.com/in/stevelickteig/) .…

The Wayback Machine was in full force today when my buddy Darren Petronella (https://www.linkedin.com/in/darrenpetronella/) dropped by the studio for an IRL nostalgia-driven, GenX-themed episode about aging gracefully and our modern-day "Get Off My Lawn" grievances about life, the universe, and everything. Darren and I first met while undergraduates at SUNY…

The fight for equitable healthcare goes to Congress. Plus, we meet the next generation of breast cancer activists. Relevant Resources: Leslie’s Week (https://www.lesliesweek.org/) METAvivor - Political advocacy work (https://www.metavivor.org/take-action/stage-iv-stampede/) Tigerlily Foundation - Political Advocacy Work (https://www.tigerlilyfoundation.org/heal-policy-center-of-excellence/) Tigerlily Foundation - RAISE (https://raise.tigerlilyfoundation.org/) See Privacy Policy at https://art19.com/privacy and California Privacy Notice…

Testing Our Patients is a limited discussion series about how the sausage is made when bringing life-saving diagnostic tests and breakthrough medicines to cancer patients in desperate need of hope. In this episode, we welcome Dr.Rafael Fonseca (Chief Innovation Officer at Mayo Clinic in Arizona) and Dr.Ola Landgren (Chief of…

As an epilogue to the pilot episode of Not Expecting, Matthew welcomes Ann Scalia (Director, Clinical Education for Alliance RX Walgreens Pharmacy) and Ashley McClure-Wolfson (Manager or Clinical Program Development Walgreens) for an in-person roundtable conversation and recap discussion. What is "Right to Parenthood in 2024?" What's new in the…

Sickle cell disease (SCD) can affect many areas, including daily life, and some of the effects can be lifelong. More so, SCD impacts the quality of life for many patients in the form of depression, anxiety, executive function, and more. In partnership with The Sickle Cell Disease Association of America,…